First I have to apologize for the lack of updates I have not been providing for any of your following this. So much is going on in our world that unfortunately the blog is one of the first things that gets lost.
So within the last month Kate got a Bone Marrow Biopsy at the beginning of May and just last Wednesday she got the very painful Lumbar Puncture. She has had the Lumbar Punctures before but it didn't whoop her ass like it did this time. She was throw up sick and fevers for about t
Kelsey has been one of Kates best friends since she was very young. Kelsey has started a fund raiser which you can see below. Her website is https://KelseyCrafts.com to order and get more information.
We tried so many mattresses. Donating our old mattress that isn't worn out to someone who needs it.
Donation Centers:
(Salvation Army) - www.satruck.org
(Goodwill) - http://www.goodwill.org/
(Donation Town) - http://www.donationtown.org/donation-pick-up.html
(Habitat for Humanity) - http://www.habitat.org/restores
(Bye Bye Mattress Recycling) - www.byebyemattress.com
So Kate received a phone call from her onacologist Dr. Yang mentioning that her Bone Marrow Biopsy and MRD test have come back negative so not finding any sign of cancer but he is still concerned why Kate's body isn't healing. Her platelets are not increasing as they should which is making it difficult to continue the necessary aggressive treatment keeping the cancer dead and gone. He has requested Kate talk to a bone marrow transplant representative to discuss options.
Obviously this has
No A.L.L. treatments since Week 37
Bloodwork Results
Potassium:
Bilirubin(Liver Function):
White Blood Cells (WBC 4.0-10.0):
Hemoglobin (HGB 11.5-16.0):
Platelets (PLT 150-500): 30
Transfusions
Blood: NO
Platelets: NO
Procedures
Lumbar Puncture: NO
BoneMarrow Biopsy: NO
Chemo
Methotrexate via IV drip (avg __min infusion): NO
Vincristine via IV drip
Of course fighting cancer isn’t enough that we have to throw a fractured hip into the mix.
Today Kate will receive a femeral neck system which looks like below
We arrived at the hospital at 9am and had to do the typical check in stuff and Kates favorite having to put on a gown that appears made for a much larger person.
Talked to Nurse Karen which is the liaison between hospital and patient groupie like me.
Kate surgery starts at 11am and goes to anywhere between 12:30 and
No treatments last week which was week32 of fighting A.L.L.
Bloodwork Results
Potassium:
Bilirubin(Liver Function):
White Blood Cells (WBC 4.0-10.0): 2.0
Hemoglobin (HGB 11.5-16.0):
Platelets (PLT 150-500): 31
Transfusions
Blood: NO
Platelets: NO
Procedures
Lumbar Puncture: NO
BoneMarrow Biopsy: NO
Chemo
Methotrexate via IV d
Friday (10/16/2020) Kate fell down and landed on her side, actually more specifically her hip and serious pain. Now we didn't hear any noise besides of the fall itself so we don't believe she broke her hip but could of fractured it but then we don't believe heat (like the heating bad) would help and it does. So we believe she has just bruised tendons, muscle and after a week she should be good to go but we'll see. I tried to convince her to go the emergency room because the faces she was maki
No treatments last week which was week32 of fighting A.L.L.
Bloodwork Results
Potassium:
Bilirubin(Liver Function):
White Blood Cells (WBC 4.0-10.0): 3.40
Hemoglobin (HGB 11.5-16.0): 11.50
Platelets (PLT 150-500): 25.00
Transfusions
Blood: NO
Platelets: NO
Procedures
Lumbar Puncture: NO
BoneMarrow Biopsy: NO
Chemo
Methotrexate via IV drip (avg __min infusio
If you are looking for the Blog entries for weeks 29 and 30 you won't find them since the doctor wants Kate's body to heal. So no chemo and no bloodwork for the two weeks but back at it today 9/14
Bloodwork, Chemo, Biopsy, Puncture??
Bloodwork Results
Potassium:
Bilirubin(Liver Function):
White Blood Cells (WBC 4.0-10.0): 2.9
Hemoglobin (HGB 11.5-16.0): 10.5
Platelets (PLT 150-500): 26
Transfusions
B
The pain in Kate's feet is driving her crazy. It's painful no matter if she's walking or not but more painful if she's walking. We have tried foot baths which help relieve the pain but not the tingling sensation that eventually turns into pain. The doctors prescribe a medicine to help with the pain but it puts her to sleep.
Bloodwork Results
Potassium:
Bilirubin(Liver Function):
White Blood Cells (WBC 4.0-10.0): 2.6
Hemoglobin (HGB 11.5-16.0):
Coming close to the end of July and this week Kate is hoping she is back on the treatment plan which means hopefully her blood counts are good.
Bloodwork Results
Potassium:
Bilirubin(Liver Function):
White Blood Cells (WBC 4.0-10.0): .
Hemoglobin (HGB 11.5-16.0):
Platelets (PLT 150-500):
Transfusions
Blood: YES/NO
Platelets: YES/NO
Procedures
Lumbar Puncture: YES/NO
BoneMarrow B
Here we are on Week 22 of Kate's fight against Blood Cancer. Here are all the updates related to whats going on this week.
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Bloodwork Results
Potassium:
Bilirubin(Liver Function):
White Blood Cells (WBC 4.0-10.0): .
Hemoglobin (HGB 11.5-16.0):
Platelets (PLT 150-500):
Transfusions
Blood: YES/NO
Platelets: YES/NO
Procedures
Lumbar Puncture: YES/NO
Welcome to Week 20 of fighting Acute Lymphoblastic Leukemia (A.L.L.) which is a medical way of saying cancer in your blood.
It's going to get more aggressive this week
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Bloodwork Results
Potassium:
Bilirubin(Liver Function):
White Blood Cells (WBC 4.0-10.0): .
Hemoglobin (HGB 11.5-16.0):
Platelets (PLT 150-500):
Transfusions
Blood: YES/NO
Platelets: YES/NO
Proced
It’s Tuesday and Kate has a doctor consultation and bloodwork and we'll find out more about his plans. Dr. Yang doesn't like to give a schedule out too far since he really evaluates Kate's condition all the time and changes the prescription of her cure according to how her body reacts.
Kate and I noticed her hair is finally coming back but not enough to where Kate is comfortable not wearing her head covering which is basically like a scarf and looks similar to the one here
This week Kate is taking antibiotics for the fever she was having previous week and this antibiotic is making her feel very sick (like the vomiting sick) but she should be done with the antibiotics by Friday at the latest. Also she is fighting neuropathy in her feet now where before she was just experiencing it in her hands. The doctor said this is an expected result from the Vincristine chemotherapy drug.
What is peripheral neuropathy?
Peripheral neuropathy is a blanket term for pai
Here we go.. last week was a rough one with Kate running a fever of 103.8 after her port placement. Then the horror of going through the Emergency Room at Harper Hutzel to then get admitted to the desired Karmanos. It was a rough week but what they did worked since Kate had a good weekend as well as Monday and Tuesday. Now we have two appointments (so far) for Wednesday and Thursday with Wednesday being the big day with Lab work, Dr consultation with Dr. Yang, chemo and then Lumbar Puncture.
