Jump to content

K8 Strong the Jouney

  • entries
    43
  • comments
    116
  • views
    3,306

Contributors to this blog

About this blog

Our journey through Acute lymphoblastic leukemia (A.L.L.) which is a type of cancer of the blood and bone marrow that affects white blood cells. Acute lymphoblastic leukemia is the most common childhood cancer. It occurs when a bone marrow cell develops errors in its DNA.

Follow us while Kate battles cancer at the age of 35 years old and what experiences she encounters as well as learn what helps and what doesn't.  We will do our best to keep the blog up to date to help others going through this disease with the thought of helping others in such a troubled time.

Please comment on your experiences if similar and offer what worked for you since this is our first time and we know not everyone has the same experiences.

Entries in this blog

Week 8 (Aggressive)

Getting weaker by the week.  Chemo Treatments now have Kate in what they call a chemo fog.  She is having difficulty concentrating and standing for any length of time is not seen but she can make it to the restroom, and get a glass of water but prolonged standing (like to make dinner or talking to standing in a line is no way). Luckily this week she should only have to come down to Karmanos three times a week with one of those days (today) being the day she is getting a crap load of chemo.

rev.dennis

rev.dennis

Week 7 (Aggressive)

Welcome to Week 7 of Kates journey of fighting the crap out of this disease.  We have bloodwork and chemotherapy scheduled for today.

rev.dennis

rev.dennis

Week 6 (Aggressive)

We now begin some aggressive treatment starting off with bloodwork, lumbar puncture and then chemotherapy. You have probably seen that Kate has had several Lumbar Punctures and may not know what it is. Bloodwork results will get added to the calendar date for today. Good news is Dr.Yang said she is doing better and the bone marrow biopsy showed no signs of Leukemia but that doesn't mean its gone and it just means its not visible through the testing they are doing currently but t

rev.dennis

rev.dennis

Week 5

We are now into Week 5 of the Treatment and this is a non-chemo week but tomorrow (Tuesday) they will still need to do a bone marrow biopsy.  So far, now time off for Kate since Leukemia isn't taking any time off.  So with every curve and punch cancer is dishing out to Kate she fights right back by taking the medicine, toughing through the bone marrow biopsies and lumbar punctures. She is noticing what was very easy for her to do is becoming more difficult like swallowing pills.  She has to

rev.dennis

rev.dennis

Week 4 (Induction Phase)

We are "suppose" to be on the last week of the Induction process.  It's very very busy in the waiting room (more so than we have ever seen).  Asking if she needs to continue the Bactrin prescription or not since she has a refill on the bottle so before we go get it refilled, making sure she needs to continue. Mentioning her ribs starting hurting Tuesday March 3rd, 2020.... 9:50am Kate got her blood work done (they are so busy so running behind schedule) 11:30am Kate got broug

rev.dennis

rev.dennis

Week 33 (Remission Day 1)

No treatments last week which was week32 of fighting A.L.L. Bloodwork Results Potassium:  Bilirubin(Liver Function):  White Blood Cells (WBC 4.0-10.0): 3.40 Hemoglobin (HGB 11.5-16.0): 11.50 Platelets (PLT 150-500): 25.00 Transfusions Blood: NO Platelets: NO Procedures Lumbar Puncture: NO BoneMarrow Biopsy: NO Chemo Methotrexate via IV drip (avg __min infusio

rev.dennis

rev.dennis in Cancer

Week 31

If you are looking for the Blog entries for weeks 29 and 30 you won't find them since the doctor wants Kate's body to heal.  So no chemo and no bloodwork for the two weeks but back at it today 9/14 Bloodwork, Chemo, Biopsy, Puncture?? Bloodwork Results Potassium:  Bilirubin(Liver Function):  White Blood Cells (WBC 4.0-10.0): 2.9 Hemoglobin (HGB 11.5-16.0): 10.5 Platelets (PLT 150-500): 26 Transfusions B

rev.dennis

rev.dennis in Cancer

Week 3 (Induction Phase)

We are at the Karmanos Cancer Institute in Detroit for our 3rd Chemotherapy Treatment as part 3 of 4 of the Induction process.  This week they are introducing Rituxin to the normal two she has been receiving.  It appears Rutuxin has less side effects as the new drug they used last week so that is good.  Especially since I'm on-call starting Tuesday to Tuesday so I will be concentrating more on my job.  If we take last week as any indication on how busy On-Call has been, I'll be busy every night

guru

guru

Week 28

MONDAY Bloodwork and results of the MRD Testing and Bone Marrow Biopsy. Bloodwork, Chemo, Biopsy, Puncture?? Bloodwork Results Potassium:  Bilirubin(Liver Function):  White Blood Cells (WBC 4.0-10.0): . Hemoglobin (HGB 11.5-16.0):  Platelets (PLT 150-500):  Transfusions Blood: YES/NO Platelets: YES/NO Procedures Lumbar Puncture: YES/NO BoneMarrow Biopsy: YES/NO Chemo

rev.dennis

rev.dennis

Week 26

The pain in Kate's feet is driving her crazy.  It's painful no matter if she's walking or not but more painful if she's walking.  We have tried foot baths which help relieve the pain but not the tingling sensation that eventually turns into pain.  The doctors prescribe a medicine to help with the pain but it puts her to sleep. Bloodwork Results Potassium:  Bilirubin(Liver Function):  White Blood Cells (WBC 4.0-10.0):  2.6 Hemoglobin (HGB 11.5-16.0):

rev.dennis

rev.dennis

Week 25

Bloodwork Results Potassium:  Bilirubin(Liver Function):  White Blood Cells (WBC 4.0-10.0): . Hemoglobin (HGB 11.5-16.0):  Platelets (PLT 150-500):  Transfusions Blood: YES/NO Platelets: YES/NO Procedures Lumbar Puncture: YES/NO BoneMarrow Biopsy: YES/NO Chemo Methotrexate via IV drip (avg __min infusion): YES/NO Vincristine via IV drip (avg 5min infusion): YES/NO

rev.dennis

rev.dennis

Week 24

Hopefully Kate can continue chemo this week Bloodwork Results Potassium:  Bilirubin(Liver Function):  White Blood Cells (WBC 4.0-10.0): . Hemoglobin (HGB 11.5-16.0):  Platelets (PLT 150-500):  Transfusions Blood: YES/NO Platelets: YES/NO Procedures Lumbar Puncture: YES/NO BoneMarrow Biopsy: YES/NO Chemo Methotrexate via IV drip (avg __min infusion): YES/NO Vinc

rev.dennis

rev.dennis

Week 23

Coming close to the end of July and this week Kate is hoping she is back on the treatment plan which means hopefully her blood counts are good. Bloodwork Results Potassium:  Bilirubin(Liver Function):  White Blood Cells (WBC 4.0-10.0): . Hemoglobin (HGB 11.5-16.0):  Platelets (PLT 150-500):  Transfusions Blood: YES/NO Platelets: YES/NO Procedures Lumbar Puncture: YES/NO BoneMarrow B

rev.dennis

rev.dennis

Week 22

Here we are on Week 22 of Kate's fight against Blood Cancer.  Here are all the updates related to whats going on this week.   ********************* Bloodwork Results Potassium:  Bilirubin(Liver Function):  White Blood Cells (WBC 4.0-10.0): . Hemoglobin (HGB 11.5-16.0):  Platelets (PLT 150-500):  Transfusions Blood: YES/NO Platelets: YES/NO Procedures Lumbar Puncture: YES/NO

rev.dennis

rev.dennis

Week 21

Welcome to Week 21 of Kates fight against cancer.   ********************* Bloodwork Results Potassium:  Bilirubin(Liver Function):  White Blood Cells (WBC 4.0-10.0): . Hemoglobin (HGB 11.5-16.0):  Platelets (PLT 150-500):  Transfusions Blood: YES/NO Platelets: YES/NO Procedures Lumbar Puncture: YES/NO BoneMarrow Biopsy: YES/NO Chemo Methotrexate via IV drip

Week 20

Welcome to Week 20 of fighting Acute Lymphoblastic Leukemia (A.L.L.) which is a medical way of saying cancer in your blood. It's going to get more aggressive this week ********************* Bloodwork Results Potassium:  Bilirubin(Liver Function):  White Blood Cells (WBC 4.0-10.0): . Hemoglobin (HGB 11.5-16.0):  Platelets (PLT 150-500):  Transfusions Blood: YES/NO Platelets: YES/NO Proced

rev.dennis

rev.dennis

Week 2 (Induction Phase)

So we got up at 5am to get our butts moving for our 7:15am scheduled appointment at Karmanos Cancer Institute in Detroit. Our actual appointment isn’t until 7:45am but they tell us to arrive 30minutes early which translates to someone in the military as 6:30am arrival time as Kate and I are hanging out in the parking garage. Our boys had to help us out this morning by getting themselves ready for school and Alex has to get himself on the bus. So this is our 2nd Chemo treatment as part

rev.dennis

rev.dennis

Week 19

It’s Tuesday and Kate has a doctor consultation and bloodwork and we'll find out more about his plans.  Dr. Yang doesn't like to give a schedule out too far since he really evaluates Kate's condition all the time and changes the prescription of her cure according to how her body reacts. Kate and I noticed her hair is finally coming back but not enough to where Kate is comfortable not wearing her head covering which is basically like a scarf and looks similar to the one here  

rev.dennis

rev.dennis

Week 18

Will add more later but, nose bleeds, sores in mouth we discovered why and tried a few different solutions 

rev.dennis

rev.dennis

Week 17

This week Kate is taking antibiotics for the fever she was having previous week and this antibiotic is making her feel very sick (like the vomiting sick) but she should be done with the antibiotics by Friday at the latest.  Also she is fighting neuropathy in her feet now where before she was just experiencing it in her hands.  The doctor said this is an expected result from the Vincristine chemotherapy drug. What is peripheral neuropathy? Peripheral neuropathy is a blanket term for pai

Week 16

Here we go..  last week was a rough one with Kate running a fever of 103.8 after her port placement.  Then the horror of going through the Emergency Room at Harper Hutzel to then get admitted to the desired Karmanos.  It was a rough week but what they did worked since Kate had a good weekend as well as Monday and Tuesday.  Now we have two appointments (so far) for Wednesday and Thursday with Wednesday being the big day with Lab work, Dr consultation with Dr. Yang, chemo and then Lumbar Puncture.

Week 15

This week isn't about the chemo but more about a big Tuesday appointment where Kate will move from a PICC line to a PORT as well as get an Bone Marrow Biopsy / MRD Test. What is an MRD Test? Measurable or minimal residual disease (MRD) testing is used to see if the cancer treatment is working and to guide further treatment plans. MRD testing is mainly used in blood cancers (leukemia, lymphoma and myeloma), but is being studied in other cancers. It is a type o

Week 14 (Aggressive)

This is our 2nd week of Chemo Treatment 3 times a week.  This "should be" also our last 3 times a week treatment which Kate is excited about.

Announcements




×
×
  • Create New...