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Everything posted by rev.dennis

  1. Great news.. Kate gets to leave. Be home by 3
  2. 11am kate just got her dose of all her anti-biotics and miraLAX and her steroid. Still getting blood transfusion.
  3. at 10:06am she took the potassium pills but the nurse was nice enough to crush the HUGE pills up and mix it with some orange juice to help kate take them. She said it tasted like generic tang... not great but WAY better than trying to swallow a hot wheels car. She is receiving her 9th bag (unit) of blood so we can go home. They will need to do bloodwork after the bag is in her system, change the bandage around the PICC line and we should be able to go home. We are guessing around 2pm but not sure.
  4. They did bloodwork this morning around 4am and we just got the results (7am) that Kate’s hemoglobin is back down to 6.7 so now they can order the blood transfusion. Platelets are holding at 24 but her potassium went down so she needs to take the biggest pill you have ever seen. Looks like she may need to take some miraLAX.
  5. rev.dennis

    Induction Treatment 4 of 4

    chemo induction treatment 4 of 4
  6. rev.dennis

    Induction Treatment 3 of 4

    this is the tentative scheduled day for kates 3rd induction chemo treatment
  7. rev.dennis

    Induction Treatment 2 of 4

    this will be kate’s second of four induction phase treatments. we have to be at karmanos in detroit by 7am
  8. rev.dennis

    Kate gets to go home

    Been at the hospital since Sunday.
  9. So today we walked around the floor with her pet IV stand closely in hand. She decided to wear a gown with an exposed back which proudly displays the lovely bruises from the bone marrow biopsy and lumbar puncture. We did two Different walks which all together equals about 1/2 mile walked today. they dropped her bloodwork to once a day instead of the typical twice a day. No bowl movement since Tuesday so they gave her some Colace. she should get bloodwork at either 3am or 5am, then blood transfusion. Odd but her hemoglobin has to be less than 7 for her to get a blood transfusion and it was at 7.1 this morning so we all know it will be low 6 probably tomorrow morning which will prompt the blood transfusion allowing Kate and I to go home for the weekend.
  10. What is cancer? To answer this question, you can start with the basic make-up of the human body. For example, “The body is made up of cells. Normally cells are healthy, but sometimes there are unhealthy, abnormal cells that grow and aren’t supposed to be there. This is called cancer.” Once there is a basic understanding of cancer, you can go into detail on what part of the body is affected by the cancer (e.g., lung cancer). Can I catch cancer? Many children, even teenagers, think cancer is contagious. Because of this they may choose to distance themselves from the person with cancer. To help children understand, you can explain that cancer is not contagious like a cold or the flu. You cannot catch cancer. You cannot get it from hugging or kissing someone, or sharing their food or drink. What is chemotherapy/radiation/surgery? Cancer treatment can often seem like a mystery to children. You may go in for a treatment and come home feeling worse because of the side effects. This can be very confusing for kids. When you talk to your child about treatment, try to include some information on possible side effects the doctor has shared with you. This can help prepare a child for what he or she may see in the future. Here are some possible ways to explain common cancer treatments and side effects: “Chemotherapy is a medicine that attacks cancer cells. Chemotherapy is very strong and can sometimes cause the person taking it to feel sick and tired.” “Radiation therapy attacks cancer cells. It is similar to an x-ray and targets the area with cancer. I cannot feel radiation when it is happening, but it can cause me to feel tired afterwards.” “Surgery is when a doctor will surgically remove an area where cancer is located.” “Sometimes someone with cancer will have one type of treatment, and other times they will have a combination of treatments including chemotherapy, radiation, and surgery.” Why are you losing your hair? Hair loss is one of the most obvious side effects of cancer treatment. Many children think cancer causes hair loss and they don’t understand that it is actually the medicine that causes hair to fall out. One way to explain this is by talking about how the medicine is so strong that it attacks the normal cells at the same time as it attacks the unhealthy, abnormal cancer cells. Hair is made of normal, healthy cells, so sometimes people living with cancer lose their hair. Explain that eventually the hair will grow back (this is often something that children wonder about). Do people with cancer die? Are you going to die? What is going to happen? These can be the hardest questions to hear your child ask, and surely the hardest questions to answer. Your answers will depend on your personal cancer experience; however, many find it can be helpful to be hopeful and honest with your responses. Chances are your child will hear that other people have died from cancer, and perhaps they even know someone who has died from cancer. One possible response may be, “People can die from cancer, but many people live. My doctors are doing everything they can to get rid of my cancer. That’s why I am at so many doctors’ appointments and have so many visits to the hospital. Right now they think that the medicine is working, but if that changes, I will let you know.” Children want to know that if there is a change, you won’t keep it from them. Try to update them when it seems appropriate. Children also worry about what will happen to them if their parent dies. They wonder about who will take care of them and their basic needs. It can be very helpful and reassuring to let your child know who would take care of them, and remind them of the people in their life who care for them. fsac_what_do_i_tell_the_kids_smaller.pdf
  11. Kate got about 3 hours sleep last night. They said the chemo chemicals would cause sleeplessness. Kate is getting headaches but they give her a Tylenol 3 before going to sleep and it helps relieve the pain and allow her to sleep. They took blood at 5am and Hemoglobin dropped to 7.1 and Platelets dropped to 24k. She is also still getting some nausea but the Zofran does help relieve it.
  12. Kate got another dose of antibiotics and her daily steroid at 10:15am antifungal: diflucan antibacterial: bactrin antiviral: aciclovir steroid: prednisone which she'll get every day during the induction phase (roughly 28 days) And still getting the IV drip of cefepime (2gm/100mL) which is also used to treat bacterial infections.
  13. LABs moved up to twice a day because of Chemo they need to keep monitoring blood counts. As of now, morning labs came back with hemoglobin 7+ & platelets 33 so no blood transfusion at the moment. We'll have another bloodwork around 5pm tonight and we'll see what her numbers are then. We are still on track for going home Friday and we are both hoping that stays true since she is going stir crazy being cooped up in the hospital. I may leave today to go get a shower and change of clothes since we are here until Friday. I feel disgusting so need a refresher. Hoping they validate the parking since we have been there since Sunday. Nurses helped kate change into a new gown and I got her a breakfast bagel. They flushed the PICC line to help the machine stop beeping because of blockage. They also recommended her getting up and walking the floor. Bandage for PICC line will be changed before we go home which will be nice even though we are only home for Saturday and Sunday and back on Monday for an all day treatment but its suppose to be outpatient so we'll be able to go back home. She is getting Zofran for nauseous at 9am
  14. Bloodwork at 3am and then more antibiotics at 4:30am unfortunately Kate didn’t get much sleep (which is another side effect of chemo). She’s also nauseous and did have tingling in her feet but she was able to work out the tingling. visit from internal medicine at 7:30am to check on her status.
  15. They just put a bag of cefepime and a couple blue pills which we believe is antibiotics (fungal, bacterial, )
  16. Kate is doing good. She's groggy but doing okay. Just brought her an ICEE (coke.. uh oh), grilled chicken bits from chik-fil-a and watching TV. Shes not a fan of how she feels because its different than anything else she felt. She is homesick... missing her puppies. I'm saying she's emotional which the doc said a side effect of the medicine.
  17. at this time (15:12) kate received the daunorubicin via syringe. Nurse mentioned it is important for oral hygiene since it could create sores in your mouth. Also it will more than likely create red urine. They are also giving the vincristine via IV. COMPLETED adding the daunorubicin and vincristine at 15:30
  18. Dr.yang came in at the this time and gave us more information. Results of lumbar punture (spinal tap) proved positive results (no cancer in spinal fluid). He also spoke about treatment which includes: the following once a week (every Monday as out patient): daunorubicin (side effect: nausea, hair loss) - Syringe vincristine (side effect: tingling in hands) - IV bag *constipation is a worry with treatments so much the nurse and doctors ask every time they come in the following every day for 28 days: steroid: prednisone may add another drug week 2 and another drug that is used on children week 3 (rituxan) which focuses on A.L.L. he mentioned things to pay attention to while she’s home which is mainly infection (fever of 100.4 that lasts more than 30minutes she must come to ER). mentioned chemo will reduce platelets which are optimum at 50k but at 30k now and we may notice bleeding when below 10k. —— after Induction period (first 4 weeks) the chemotherapy gets kicked up a notch and is unpleasant and this will happen for 6 months and sounds like multiple visits per week. .. Kates first chemotherapy treatment is coming soon (sometime this afternoon) They gave Zofran (for nausea) and Prednisone (the steroid) today at 14:30
  19. Internal Medicine (3 doctors) just came in and checked to see how Kate is doing and feeling. Sounds like Chemotherapy is still on the docket for today but we are awaiting Dr.Yang. They checked on how Kate is doing with all the procedures she had done yesterday. She is super sleepy and is passed out now but I think its a good thing. I see its lunch time and I may sneak downstairs and get something to munch on. I love chips but because of all the stroke victims in the hospital I lean away from them since its one of the major causes of a stroke. Actually I have been trying to eat healthy so I can keep taking care of Kate but I may break down and get something non-healthy (meaning something with some flavor) today for lunch like a burger from Wendys.
  20. Kate's fed, she took a tylenol 3 for pain (pill), allopurinol (pill), antiviral (pill), anti-bacterial (pill) and an anti fungal (oral liquid) medicine. Now we wait for Dr. Yang to give us the game plan for today.
  21. We are awake. I’m getting breakfast for her.
  22. Kate got some sleep and woke up on her own at 4am because she had to pee. The nurses then did bloodwork to see if her hemoglobin is back up from 7.4 now that she had a unit of blood last night. white blood cells 1.3 (normal is 4-11) and platelets 35 (normal is 55+).
  23. we just got moved down to the chemotherapy floor (8) so now we are in room 8223 her hemoglobin is down to 7 so they are going to give her a blood transfusion.
  24. Kate got some food in her and now she’s fighting through some pain (with the assist of some pain killers) and maybe one more dose of pain killers before she tries to get some sleep. im hoping to sleep on a cot or anything besides these chairs which are not comfortable. i really need to thank our friends And family for helping take care of our dogs while we are gone. It’s a huge stress for Kate and I being so far away but everyone seems to be helping relieve the stress and I seriously can’t thank u enough. it appear the remaining of our night will be hopefully uneventful so don’t be surprised if you don’t see anymore posts tonight (unless something negative happens). good night
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