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Week 17

This week Kate is taking antibiotics for the fever she was having previous week and this antibiotic is making her feel very sick (like the vomiting sick) but she should be done with the antibiotics by Friday at the latest.  Also she is fighting neuropathy in her feet now where before she was just experiencing it in her hands.  The doctor said this is an expected result from the Vincristine chemotherapy drug.

What is peripheral neuropathy?

Peripheral neuropathy is a blanket term for pain and discomfort and other symptoms that result from damage to peripheral nerves, which are the nerves that extend away from the brain and spinal cord.

The peripheral nervous system carries signals from the brain and spinal cord to the rest of your body, and then returns nerve signals from the periphery to be received by the spinal cord and brain. Any problems along the way can affect the skin, muscles, and joints of your hands, feet, and other parts of the body.

Many things can cause neuropathy, including certain chemotherapy drugs. Damage to peripheral nerves by these drugs is called chemotherapy-induced peripheral neuropathy, abbreviated as CIPN.

CIPN isn’t uncommon. Of people with cancer who are treated with chemotherapy, about 30 to 40 percent develop CIPN. It’s one of the reasons that some stop cancer treatment early.

 

What is the plan for this week?

  • Thursday we go down for a quick follow up with the Infectous Disease doctors to make sure she is okay and maintain no fever.
  • Friday is her big day that we will be down in Detroit most of the day.


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Last night Kate was really not feeling good and her feet now have full out neuropathy so tingling and pain in her feet.  In reading online a couple of solutions that I read was more vitamin B anything, dairy and eggs.  Also they recommended a foot bath with some Epsom salt so I broke out the foot bath (haven't even used it and we've had it for years), put some about 1/2 coup Epsom Salt in it to a gallon of above warm water and ran it for 20minutes and Kate said the pain went away but the tingling remained.  At least we are half way there.

Now getting ready to go to the Infectious Disease doctor (which we have never been to his office in Detroit since he visited her in Karmanos).

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Okay Wayne State doctors offices are very very bad.  So they wrote on Kates discharge paperwork to see the doctor today and of course listed three addresses so Kate did the research to confirm the correct address and she discovers (through 30minutes of phone hopping) no appointment is scheduled with her today.  So that was the long way of saying no appointment with the Infectious Disease doctor today.

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Today’s is treatment day. Apparently Friday’s are busy days to be down here...the waiting room was full and I had to wait quite a bit longer than normal. They used my port for the first time. I was more nervous than usual about it hurting...probably cuz their approaching my chest to stab me with a needle. But it turned out to just feel like a strong pinch and then it was done. I can live with that. 
Dr Yang prescribed me a new med I have to pick up for the neuropathy. It’s supposed to help with the pain but he said it can make me feel groggy. Lovely. I’ll pick it up on my way home and try it tonight. Hopefully it helps. I’ve dealt with it in my hands but the feet I can’t handle. He also suggested I start taking Prilosec every morning to help with the acid reflux. Since I’m at the point of soup making me feel sick it’s worth a shot. 

We held the vincristine today because of my neuropathy. 

Bloodwork Results

  • Potassium: 3.7
  • Bilirubin(Liver Function): 1.71
  • White Blood Cells (WBC 4.0-10.0): 4.7!!! 
  • Hemoglobin (HGB 11.5-16.0): 10.8
  • Platelets (PLT 150-500):  67

Transfusions

  • Blood: NO
  • Platelets: NO

Procedures

  • Lumbar Puncture: NO
  • BoneMarrow Biopsy: NO

Chemo

  • Daunorubicin via Syring (avg 5min infusion): NO
  • Vincristine via IV drip (avg 5min infusion): NO
  • Pegasparagus via drip (avg infusion): NO
  • Cyclosphomine: NO
  • Cytarabine: NO
  • Rituxan via IV drip (avg 1.5 hour infusion): YES
  • Methotrexate: YES
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