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K8 Strong the Jouney

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About this blog

Our journey through Acute lymphoblastic leukemia (A.L.L.) which is a type of cancer of the blood and bone marrow that affects white blood cells. Acute lymphoblastic leukemia is the most common childhood cancer. It occurs when a bone marrow cell develops errors in its DNA.

Follow us while Kate battles cancer at the age of 35 years old and what experiences she encounters as well as learn what helps and what doesn't.  We will do our best to keep the blog up to date to help others going through this disease with the thought of helping others in such a troubled time.

Please comment on your experiences if similar and offer what worked for you since this is our first time and we know not everyone has the same experiences.

Entries in this blog

Catching up in May 2021

First I have to apologize for the lack of updates I have not been providing for any of your following this.  So much is going on in our world that unfortunately the blog is one of the first things that gets lost. So within the last month Kate got a Bone Marrow Biopsy at the beginning of May and just last Wednesday she got the very painful Lumbar Puncture.  She has had the Lumbar Punctures before but it didn't whoop her ass like it did this time.  She was throw up sick and fevers for about t

Kates Best Friends Fund Raiser

Kelsey has been one of Kates best friends since she was very young. Kelsey has started a fund raiser which you can see below.  Her website is https://KelseyCrafts.com to order and get more information.      

Mattress Upgrade

We tried so many mattresses.  Donating our old mattress that isn't worn out to someone who needs it. Donation Centers: (Salvation Army) - www.satruck.org (Goodwill) - http://www.goodwill.org/ (Donation Town) - http://www.donationtown.org/donation-pick-up.html (Habitat for Humanity) - http://www.habitat.org/restores (Bye Bye Mattress Recycling) - www.byebyemattress.com  

rev.dennis

rev.dennis in HEALTH

Bone Marrow Transplant

So Kate received a phone call from her onacologist Dr. Yang mentioning that her Bone Marrow Biopsy and MRD test have come back negative so not finding any sign of cancer but he is still concerned why Kate's body isn't healing.  Her platelets are not increasing as they should which is making it difficult to continue the necessary aggressive treatment keeping the cancer dead and gone.  He has requested Kate talk to a bone marrow transplant representative to discuss options. Obviously this has

rev.dennis

rev.dennis in HEALTH

Week 19

It’s Tuesday and Kate has a doctor consultation and bloodwork and we'll find out more about his plans.  Dr. Yang doesn't like to give a schedule out too far since he really evaluates Kate's condition all the time and changes the prescription of her cure according to how her body reacts. Kate and I noticed her hair is finally coming back but not enough to where Kate is comfortable not wearing her head covering which is basically like a scarf and looks similar to the one here  

rev.dennis

rev.dennis in Cancer

Week 18

Will add more later but, nose bleeds, sores in mouth we discovered why and tried a few different solutions 

rev.dennis

rev.dennis in Cancer

Week 17

This week Kate is taking antibiotics for the fever she was having previous week and this antibiotic is making her feel very sick (like the vomiting sick) but she should be done with the antibiotics by Friday at the latest.  Also she is fighting neuropathy in her feet now where before she was just experiencing it in her hands.  The doctor said this is an expected result from the Vincristine chemotherapy drug. What is peripheral neuropathy? Peripheral neuropathy is a blanket term for pai

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rev.dennis in Cancer

Week 16

Here we go..  last week was a rough one with Kate running a fever of 103.8 after her port placement.  Then the horror of going through the Emergency Room at Harper Hutzel to then get admitted to the desired Karmanos.  It was a rough week but what they did worked since Kate had a good weekend as well as Monday and Tuesday.  Now we have two appointments (so far) for Wednesday and Thursday with Wednesday being the big day with Lab work, Dr consultation with Dr. Yang, chemo and then Lumbar Puncture.

rev.dennis

rev.dennis in Cancer

Week 15

This week isn't about the chemo but more about a big Tuesday appointment where Kate will move from a PICC line to a PORT as well as get an Bone Marrow Biopsy / MRD Test. What is an MRD Test? Measurable or minimal residual disease (MRD) testing is used to see if the cancer treatment is working and to guide further treatment plans. MRD testing is mainly used in blood cancers (leukemia, lymphoma and myeloma), but is being studied in other cancers. It is a type o

rev.dennis

rev.dennis in Cancer

Week 12 (Aggressive)

This past week has been very rough on Kate.  Sick to her stomach, the unwillingness to eat.  The nurses give her saltine crackers while getting Chemo so I went to the store and picked up several different types of crackers in case one tastes better than another to her.  Pretty much anything with flavor is a no go for her.  

rev.dennis

rev.dennis in Cancer

Week 11 (Aggressive)

Kate had her bloodwork done and is getting Rituxan, Cytarabine and a new one Cyclosphomine as her Chemotherapy treatment today (Monday).  They did the pre-meds of Tylenol, Benadryl and Zofran for the nausea.  Dr. Yang kinda gave kate a run down of what the penciled plan is coming up and it goes a little something like this...   4 WEEK TREATMENT (including the week we are on now) week 1: 4x a week week 2: 4x a week week 3: 3x a week week 4: 3x a week  

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rev.dennis in Cancer

Week 20

Welcome to Week 20 of fighting Acute Lymphoblastic Leukemia (A.L.L.) which is a medical way of saying cancer in your blood. It's going to get more aggressive this week ********************* Bloodwork Results Potassium:  Bilirubin(Liver Function):  White Blood Cells (WBC 4.0-10.0): . Hemoglobin (HGB 11.5-16.0):  Platelets (PLT 150-500):  Transfusions Blood: YES/NO Platelets: YES/NO Proced

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rev.dennis in Cancer

Week 21

Welcome to Week 21 of Kates fight against cancer.   ********************* Bloodwork Results Potassium:  Bilirubin(Liver Function):  White Blood Cells (WBC 4.0-10.0): . Hemoglobin (HGB 11.5-16.0):  Platelets (PLT 150-500):  Transfusions Blood: YES/NO Platelets: YES/NO Procedures Lumbar Puncture: YES/NO BoneMarrow Biopsy: YES/NO Chemo Methotrexate via IV drip

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rev.dennis in Cancer

Week 22

Here we are on Week 22 of Kate's fight against Blood Cancer.  Here are all the updates related to whats going on this week.   ********************* Bloodwork Results Potassium:  Bilirubin(Liver Function):  White Blood Cells (WBC 4.0-10.0): . Hemoglobin (HGB 11.5-16.0):  Platelets (PLT 150-500):  Transfusions Blood: YES/NO Platelets: YES/NO Procedures Lumbar Puncture: YES/NO

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rev.dennis in Cancer

Week 23

Coming close to the end of July and this week Kate is hoping she is back on the treatment plan which means hopefully her blood counts are good. Bloodwork Results Potassium:  Bilirubin(Liver Function):  White Blood Cells (WBC 4.0-10.0): . Hemoglobin (HGB 11.5-16.0):  Platelets (PLT 150-500):  Transfusions Blood: YES/NO Platelets: YES/NO Procedures Lumbar Puncture: YES/NO BoneMarrow B

rev.dennis

rev.dennis in Cancer

Week 24

Hopefully Kate can continue chemo this week Bloodwork Results Potassium:  Bilirubin(Liver Function):  White Blood Cells (WBC 4.0-10.0): . Hemoglobin (HGB 11.5-16.0):  Platelets (PLT 150-500):  Transfusions Blood: YES/NO Platelets: YES/NO Procedures Lumbar Puncture: YES/NO BoneMarrow Biopsy: YES/NO Chemo Methotrexate via IV drip (avg __min infusion): YES/NO Vinc

rev.dennis

rev.dennis in Cancer

Week 25

Bloodwork Results Potassium:  Bilirubin(Liver Function):  White Blood Cells (WBC 4.0-10.0): . Hemoglobin (HGB 11.5-16.0):  Platelets (PLT 150-500):  Transfusions Blood: YES/NO Platelets: YES/NO Procedures Lumbar Puncture: YES/NO BoneMarrow Biopsy: YES/NO Chemo Methotrexate via IV drip (avg __min infusion): YES/NO Vincristine via IV drip (avg 5min infusion): YES/NO

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rev.dennis in Cancer

Week 10 (Aggressive)

This should be her week off from chemo and it is but that doesn't mean she gets a break from coming down to Detroit multiple times during the week for testing.  More to come

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rev.dennis in Cancer

Week 8 (Aggressive)

Getting weaker by the week.  Chemo Treatments now have Kate in what they call a chemo fog.  She is having difficulty concentrating and standing for any length of time is not seen but she can make it to the restroom, and get a glass of water but prolonged standing (like to make dinner or talking to standing in a line is no way). Luckily this week she should only have to come down to Karmanos three times a week with one of those days (today) being the day she is getting a crap load of chemo.

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rev.dennis in Cancer

Week 6 (Aggressive)

We now begin some aggressive treatment starting off with bloodwork, lumbar puncture and then chemotherapy. You have probably seen that Kate has had several Lumbar Punctures and may not know what it is. Bloodwork results will get added to the calendar date for today. Good news is Dr.Yang said she is doing better and the bone marrow biopsy showed no signs of Leukemia but that doesn't mean its gone and it just means its not visible through the testing they are doing currently but t

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rev.dennis in Cancer

Week 5

We are now into Week 5 of the Treatment and this is a non-chemo week but tomorrow (Tuesday) they will still need to do a bone marrow biopsy.  So far, now time off for Kate since Leukemia isn't taking any time off.  So with every curve and punch cancer is dishing out to Kate she fights right back by taking the medicine, toughing through the bone marrow biopsies and lumbar punctures. She is noticing what was very easy for her to do is becoming more difficult like swallowing pills.  She has to

rev.dennis

rev.dennis in Cancer

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