This week isn't about the chemo but more about a big Tuesday appointment where Kate will move
from a PICC line
to a PORT
as well as get an Bone Marrow Biopsy / MRD Test.
What is an MRD Test?
Measurable or minimal residual disease (MRD) testing is used to see if the cancer treatment is working and to guide further treatment plans. MRD testing is mainly used in blood cancers (leukemia, lymphoma and myeloma), but is being studied in other cancers. It is a type o
Today is a great day as it celebrates a day back in 1985 when Kate Michelle was born with the help of her loving parents Diane and Larry Sipes and her two protectors (big brothers) Bill and Corey.
To really celebrate and understand someone's birthday, you take a minute and imagine what would life be like if they weren't born. I know I would of never found true love. Someone who cares as much for me as I do about them. A best friend that I don't mind being intimate with. Sharing life experi
This past week has been very rough on Kate. Sick to her stomach, the unwillingness to eat. The nurses give her saltine crackers while getting Chemo so I went to the store and picked up several different types of crackers in case one tastes better than another to her. Pretty much anything with flavor is a no go for her.
Kate had her bloodwork done and is getting Rituxan, Cytarabine and a new one Cyclosphomine as her Chemotherapy treatment today (Monday). They did the pre-meds of Tylenol, Benadryl and Zofran for the nausea.
Dr. Yang kinda gave kate a run down of what the penciled plan is coming up and it goes a little something like this...
4 WEEK TREATMENT (including the week we are on now)
week 1: 4x a week
week 2: 4x a week
week 3: 3x a week
week 4: 3x a week
This is an expensive lesson to learn so hopefully I help at least one person from making the same mistake I made regarding setting up WiFi in our home. Now our home is a brick ranch that has plaster walls making it very challenging to provide great coverage from one side of the house to the other.
First I tried ASUS router / wifi combo since it got such huge reviews but it turned off and never came back on.
Installed Apple TimeMachine with all the airport expresses throughout the hous
Getting weaker by the week. Chemo Treatments now have Kate in what they call a chemo fog. She is having difficulty concentrating and standing for any length of time is not seen but she can make it to the restroom, and get a glass of water but prolonged standing (like to make dinner or talking to standing in a line is no way).
Luckily this week she should only have to come down to Karmanos three times a week with one of those days (today) being the day she is getting a crap load of chemo.
We now begin some aggressive treatment starting off with bloodwork, lumbar puncture and then chemotherapy.
You have probably seen that Kate has had several Lumbar Punctures and may not know what it is.
Bloodwork results will get added to the calendar date for today.
Good news is Dr.Yang said she is doing better and the bone marrow biopsy showed no signs of Leukemia but that doesn't mean its gone and it just means its not visible through the testing they are doing currently but t
We are now into Week 5 of the Treatment and this is a non-chemo week but tomorrow (Tuesday) they will still need to do a bone marrow biopsy. So far, now time off for Kate since Leukemia isn't taking any time off. So with every curve and punch cancer is dishing out to Kate she fights right back by taking the medicine, toughing through the bone marrow biopsies and lumbar punctures.
She is noticing what was very easy for her to do is becoming more difficult like swallowing pills. She has to
We are "suppose" to be on the last week of the Induction process. It's very very busy in the waiting room (more so than we have ever seen). Asking if she needs to continue the Bactrin prescription or not since she has a refill on the bottle so before we go get it refilled, making sure she needs to continue.
Mentioning her ribs starting hurting Tuesday March 3rd, 2020....
9:50am Kate got her blood work done (they are so busy so running behind schedule)
11:30am Kate got broug
Watching how my wife goes through the struggles while at the beginning stages of this fight against cancer, I want to support her. She feels so awkward loosing her hair due to the chemotherapy that I don’t want her or anyone fighting cancer to feel alone.
We are at the Karmanos Cancer Institute in Detroit for our 3rd Chemotherapy Treatment as part 3 of 4 of the Induction process. This week they are introducing Rituxin to the normal two she has been receiving. It appears Rutuxin has less side effects as the new drug they used last week so that is good. Especially since I'm on-call starting Tuesday to Tuesday so I will be concentrating more on my job. If we take last week as any indication on how busy On-Call has been, I'll be busy every night
So we got up at 5am to get our butts moving for our 7:15am scheduled appointment at Karmanos Cancer Institute in Detroit. Our actual appointment isn’t until 7:45am but they tell us to arrive 30minutes early which translates to someone in the military as 6:30am arrival time as Kate and I are hanging out in the parking garage.
Our boys had to help us out this morning by getting themselves ready for school and Alex has to get himself on the bus.
So this is our 2nd Chemo treatment as part
What is cancer?
To answer this question, you can start with the basic make-up of the human body. For example,
“The body is made up of cells. Normally cells are healthy, but sometimes there are unhealthy, abnormal cells that grow and aren’t supposed to be there. This is called cancer.” Once there is a basic understanding of cancer, you can go into detail on what part of the body is affected by the cancer (e.g., lung cancer).
Can I catch cancer?
Many children, even teenagers, think canc
It’s 3am on 2/17/2020 and we are in a room on the 9th floor in Karmanos Cancer Facility in Detroit.
This is the beginning of the Induction process which in short means the beginning of chemo treatments while keeping a close eye on Kate during the process. The doctor believes this will take less than a week this visit but the Induction process is typically a week.
There are four phases to chemotherapy treatment:
The first phase is called Remission Induction. Treatment during th
During the time you are fighting cancer (especially A.L.L.) you will have to received several Lumbar Punctures or also referred to as Spinal Taps. So what are they?
Lumbar puncture, also known as a spinal tap, is a medical procedure in which a needle is inserted into the spinal canal, most commonly to collect cerebrospinal fluid for diagnostic testing. The main reason for a lumbar puncture is to help diagnose diseases of the central nervous system, including the brain and spine.
Tonight Kate developed a fever (running 100.5) and whats scary is they say if you have Leukemia and get a fever you must go to the nearest Emergency Room since its more than likely an infection which can prove to be fatal. So right now we are calling 1-800-Karmanos to find out what they want us to do.
Patients with acute lymphoblastic leukemia (ALL) present with either symptoms relating to direct infiltration of the marrow or other organs by leukemic cells, or symptoms relating to the decr
Last night Kate called the Support line for the Homecare nurse complaining on how much the bandage hurts after they redid it during our Hospital visit yesterday (Friday). Kate was complaining of a burning sensation and very uncomfortable. A homecare nurse showed up and was very polite and helped explain how to clean the pic line with basically salt water and yea, I got my intro on how to do this myself for Kate. She re-bandaged it up and Kate kept thanking the nurse because it was like night